The Chronic Crohns Campaign UK. ( TCCC.UK ).
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TCCC.UK Raising Awareness - Press Coverage 1996 to 2009.
TCCC.UK - More Breaking News On MAP !!!!!!!!!!!!!!!!!!!!!!
Sarah's Crohns Success Story From 1989 to 2006.
Sarah's Crohns Success Story From 2001 to 2006.
Over 90 Degrees Still Does Not Kill Map Bacteria In Milk.
Tim Page - My Side Of The Story In All This Campaigning.
How To Order Aloe Vera, As We Do, At A Lower Price In The UK.
How To Get A Glyconutrient Powder Here In The UK
"Give Us A Quid Or Two" -The DNA Crohns Vaccine Appeal
PARA'S Medical Advisory Council
PARA'S Scientific Advisory Council.
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In Loving Memory Of Hadge Elliott 1956 To 2005.
The New DNA CrohnsVaccine Summary 2006.
TCCC.UK Consultation with DEFRA in 2002 & 2004.
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Birmingham Contact For TCCC.UK - Stuart Morris IIHHT ICHT dip
MMR = Crohns or Autism ?
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Dr Ira Shafron M.D
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Crohns & Food Intolerances & Illness.
TCCC.UK Petition To The UK Prime Minister + Another Petition
DrugWatch Check Them Out...
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Further Water And Milk Press Coverage.
Can MAP Cause Ulcerated Colitis, As It Does Crohns..
TCCC.UK - Why We Are Here In 2008, To Help & Advise You.
TCCC.UK - Announcements In 2008.
Useful Addresses For Complaints On The NHS.
Hannah's Real Story - from 2006 to 2011....Ongoing.
Prof John Hermon -Taylor Updates In 2009.
Scientific Papers On IBDs.
New Crohns Book of Tim Page Crusader.
Need A Good Crohns Doctor ?
Prof John Hermon Taylor In Washington USA YouTube Links
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Crohns Disease Contact The Chronic Crohns Campaign UK
TCCC.UK - Fundraising Events 2009
" MAP Doomsday " By Prof John Hermon Taylor - August 2
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Mycobacterium sub species Avium Paratuberculosis ( MAP )
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Alternatives & Immunesuppressants - Working Together.
House Of Lords Debate On Crohns Disease 19th June 2000.
Sarah's Success Story Update In 2012
A Memorial Page To Cathy Lynn Bray -10/09/67 to 24/02/2012
28,000 TB Infected Cattle Enter Human Food chain
What's News From TCCC.UK In 2013
Tim Page - Founder of TCCC.UK in 2013.
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Milk Bug Stops Our Bodies From Fighting Off Crohns Disease
Milk bug 'stops our bodies from fighting off Crohn's disease'
By SEAN POULTER - Daily Mail - Last updated at 08:01am on 11th December 2007.
A link between a bug found in some fresh milk and Crohn's disease has been established by breakthrough research.
The discovery could bring demands to change milk production methods - perhaps following the common European practice of Ultra Heat Treatment (UHT).
It could also provide the key to antibiotic treatments for the condition, which affects approximately 150,000 Britons.
Doctors have long claimed that a bug called Mycobacterium paratuberculosis (MAP), which is found in cattle and some milk, causes Crohn's.
But the dairy industry has never accepted the link and researchers had failed to prove a connection.
Now scientists at Liverpool University have identified how MAP weakens the body's defence mechanism and so allows other harmful bugs, specifically e.coli, to thrive.
This e.coli, which is known to be present within Crohn's disease tissue in increased amounts, is believed to cause inflammation and sickness.
Crohn's leads to chronic intestinal inflammation, pain, bleeding and diarrhoea. It is a particularly distressing condition among children.
Professor Jon Rhodes, whose work was published in the journal Gastroenterology, said: "MAP " has been found within Crohn's disease tissue but there has been much controversy concerning its role in the disease."
He added that MAP releases a complex molecule which prevents white blood cells from killing e.coli.
Professor John Hermon-Taylor, Britain's leading expert on Crohn's, called for a mass vaccination of cattle against becoming infected with MAP in the first place.
He said ultra heat treatment of milk might kill the infection but it would not be a guarantee.
The Dairy Council, which speaks for milk producers, said a number of studies had failed to show a causal link between MAP in milk and Crohn's.
Its director, Dr Judith Bryans, said: "While the findings of the study are interesting, it is important to stress that not all Crohn's patients have MAP in their intestines. "This would suggest that there are additional factors which may cause Crohn's disease."
She added: "There is no need for anyone to alter their consumption of milk based on current scientific knowledge."
• Research in 2000 found that 2.1 per cent of pasteurised milk taken from eight dairies across Britain contained MAP. With more than 10billion pints of milk drunk every year - that equates to 575,342 tainted pints a day.
There are 5,000 new cases of Crohn's a year. Ninety per cent of sufferers will need surgery at some stage to tackle the serious bowel complications it causes. Stress is thought to exacerbate the illness.
Sufferers include television voice-coach Carrie Grant, actor Ken Stott and singer Beth Orton.
" Bacteria that causes Crohn's disease may be able to make their way into the body's system via cows' milk and other dairy products. "
Please boil your pasteurised milk, or any animals milk before consumption or please drink Soya milk instead to be safe. Products made from unboiled milk, whether pasteurised or not, can also carry MAP. Because of MAP surviving a year in cow's faeces on pastures which then reinfect other or new Dairy cattle, then water supplies also run the risk of being infected with MAP, as rain run off or flooding enters our rivers & water treatment plants. MAP will survive in meats especially if they are under cooked.
** Cows milk contains two bovine sugars, mucus & other bacteria other than MAP. Not really suitable for humans.
Fish Oil May Not Prevent Crohns Relapse.
Fish Oil May Not Prevent Crohn’s Relapse
Studies Show That Taking Omega-3 Fatty Acids Do Not Protect Against Flare-ups of Crohn’s Disease
By Kelley Colihan
WebMD Medical News
Reviewed by Louise Chang, MD
April 8, 2008 - Taking omega-3 fatty acids can be helpful for many things, but maybe not for preventing a relapse of Crohn's disease.
Two related studies show that omega-3s are not effective in preventing inflammation associated with Crohn's disease.
Crohn's disease is an inflammatory bowel disease that can affect anywhere along the digestive tract. With Crohn's, a patient may experience periods of remission and recurrence.
Researchers looked at whether high doses of omega-3s worked as maintenance therapy in patients with Crohn's disease in remission. A total of 738 people participated in two studies. No significant differences were observed between the two treatment groups in either trial.
In one study, 363 participants were assigned randomly to take either a daily omega-3 supplement or a placebo for 52 weeks. In the second study, 375 participants took the pills for 58 weeks.
Researchers say the results in the first and second study were similar. Here are some of the findings:
In the first study:
54 patients treated with omega-3s had a relapse.
62 patients who received a placebo relapsed.
There was no statistically significant difference in rate of relapse between the treatment and placebo groups.
In the second study:
84 patients who took an omega-3 gelatin capsule had a relapse.
94 patients who received a placebo had a relapse.
There was no statistically significant difference in rate of relapse between the treatment and placebo groups.
The research took place between January 2003 and February 2007 at centers across Canada, Europe, Israel, and the U.S.
Researchers found that even after a year of follow-up care, omega-3 fatty acids did not seem to provide any significant benefit to preventing a relapse.
The studies show no serious adverse effects for people with Crohn's disease who take large doses of omega-3 fatty acids.
Omega-3s have anti-inflammatory properties and have been used in the treatment of inflammatory disorders such as rheumatoid arthritis. Omega-3 fatty acids can also benefit those with heart disease and other problems.
The study authors write that their research is "important" because it's "widespread" among people with Crohn's disease to turn to omega-3 supplements for help based on the positive results of previous research.
The research appears in the April 9 issue of The Journal of the American Medical Association.
If you are taking Omega-3 or other Fish Oils, and you feel they are helping you, I would continue to carry on taking your Fish Oils. Crohns attacks the joints in your body & taking Omega -3 should help. Glucosomine & MSM are also good for joint problems, along with Calcium tablets - CalcichewD3 Forte available on perscription from our family GP.
The Alternative Medicine Industry is always under attack from the major drug companies, who do not like the competition to their usually longterm non effect drugs, especially when it comes to Crohns.
Sarah, my wife takes one high concentrate Evening Primrose Oil & one high concentrate Cod Liver Oil with Omega-3 capsules everyday, along with her Aloe Vera Freedom gel drink that has Glucosomine & MSM in it, for her joints too. She has reversed her severe Osteoporosis on glyconutrients.
** Please do not rush off a buy your aloe vera off the High Street, tests on these aloes show high levels of water, weak concentrate, despite the bottle's claims of high % of aloe vera & in some cases they contain bacteria. When it comes to fighting Crohns you need the strongest aloe vera in the world. ( Please ring & talk to me about this ). I only buy from Forever Living Products as on this website.
** High Concentrated Omega-3 Capsules, Cod Liver Oil Capsules etc, can be bought by mail order from another company here in Kent - Nature's Best on tel no : 01892 552187 or Fax 01892 515863.
Website : www.NaturesBest.co.uk
Cimzia Approved To Treat Crohns In Adults Who Do Not Respond To
Cimzia Approved to Treat Crohn's in Adults Who Don't Respond to Other Treatments
By Miranda Hitti
WebMD Medical News
Reviewed by Louise Chang, MD
April 23, 2008 -- The FDA has approved a new prescription drug called Cimzia to treat Crohn's disease in adults who haven't responded to other conventional therapies.
Cimzia, given by injection, targets an inflammatory chemical called tumor necrosis factor (TNF) alpha. Patients would get a shot of the drug once every two weeks at first, and then get a monthly injection if the first three shots are beneficial.
Cimzia "works to reduce the signs and symptoms of Crohn's, but it also carries risks that will require patients on it to be closely monitored by their physicians or other health care professionals," Julie Beitz, MD, director of the Office of Drug Evaluation III in the FDA's Center for Drug Evaluation and Research, says in an FDA news release.
UCB, the drug company that makes Cimzia, says that Cimzia will be available in the U.S. within 48 hours of the drug's approval on April 22.
WebMD first reported on Cimzia in July 2007, when The New England Journal of Medicine published results from the drug's clinical trials.
(What do you think about trying such a new medication? Talk with others on WebMD's Crohn's and Colitis: Support Group board.)
About Crohn's Disease
Crohn's disease is a chronic, inflammatory bowel disease that affects more than 1 million men and women worldwide. It has no cure and its cause is unknown.
Crohn's can cause diarrhea, fever, rectal bleeding, malnutrition, narrowing of the intestinal tract, obstructions, abscesses, cramping, abdominal pain, and abnormal connections (fistulas) leading from the intestine to the skin or internal organs.
"Crohn's is a debilitating disease that disrupts the quality of life for its sufferers," Beitz says.
According to UCB, the FDA approved Cimzia based on clinical trials that included more than 1,500 Crohn's patients. The patients either got Cimzia or a placebo drug.
Among patients with moderate to severe Crohn's, those taking Cimzia were more likely than those taking the placebo to have their Crohn's symptoms ease for up to six months, UCB notes.
"This drug works to reduce the signs and symptoms of Crohn's, but it also carries risks that will require patients on it to be closely monitored by their physicians or other health care professionals," Beitz says.
Cimzia's most common side effects are headache, upper respiratory tract infections, abdominal pain, injection site reactions, and nausea, according to the FDA, which notes that Cimzia may also raise the risk of serious and potentially fatal infections and increased risk of lymphomas (a type of cancer) and other malignancies.
"As seen with the use of other anti-TNF-alpha agents, serious but infrequent infections and malignancies have been reported," UCB says in a news release.
The FDA notes that although an increased risk of tumors was not seen in studies of Cimzia, those studies were too small and too brief to make a firm conclusion about tumor risk, so postmarketing studies and clinical trials will be required to get long-term safety data.
The FDA says patients taking Cimzia should be taught how to identify an infection and be instructed to contact their health care professional at the first sign of infection while on Cimzia. In cases of serious infections, Cimzia should be discontinued immediately, the FDA says.
** Please Be Aware Of These Serious Side Effects Before Taking This Drug.
Depression Does It Cause IBD... ?
Depression: Does it cause inflammatory bowel disease (IBD)?
11 September 2008
If you’re depressed or anxious, do you dramatically increase your chances of developing an inflammatory bowel disease (IBD) such as Crohn’s disease and ulcerative colitis?
Researchers have discovered a clear link between depression and the disease – but they’re not sure if the depression causes IBD or if it’s a consequence of it.
A research team from the University of Manitoba in Winnipeg assessed the health profiles of 351 IBD patients, and compared them with 779 healthy individuals. IBD sufferers had far higher levels of panic disorder, anxiety, obsessive-compulsive disorder, and major depression. They were twice as likely as healthy people to suffer from depression.
Research team leader Charles Bernstein noticed that around one-third of all IBD sufferers had their anxiety disorder or mood disorder diagnosed at around the same time their disease was diagnosed.
(Source: American Journal of Gastroenterology, 2008; 103: 1989-97).
TCCC.UK's answer to this is simply that Depression & Anxiety both lower the Immune System, as does Stress.
Lowering the immune system means our bodies have less defence against all illness. Alcohol and toxic chemicals also lower the Immune System.
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